# ME/CFS Advice/Website links/Experiences

**URL:** <https://treehouse.sofi.health/t/me-cfs-advice-website-links-experiences/9457>\
**Category:** Living with sleeplessness\
**Tags:** help\
**Created:** [9 July 2023 23:51 UTC](https://treehouse.sofi.health/t/me-cfs-advice-website-links-experiences/9457 "2023-07-09T23:51:02Z")\
**Posts on this page:** 2\
**Page:** 1

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**Author:** ![Zt13](https://avatars.discourse-cdn.com/v4/letter/z/c89c15/32.png) [@Zt13](https://treehouse.sofi.health/u/Zt13)\
**Post date:** [9 July 2023 23:51 UTC](https://treehouse.sofi.health/t/me-cfs-advice-website-links-experiences/9457/1 "2023-07-09T23:51:02Z")

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I have just been diagnosed with ME, also called CFS. I am waiting for a diagnosis for Fibromyalgia and investigations into the cause of my ME. Once the MDT meeting takes place and I receive the report, I feel like I will receive the much needed diagnoses and help with getting back to the happy go lucky, active, fun self!  
Does anyone else suffer with ME or Fibro?

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**Author:** ![drmudlark](https://avatars.discourse-cdn.com/v4/letter/d/e0b2c6/32.png) [@drmudlark](https://treehouse.sofi.health/u/drmudlark)\
**Post date:** [10 July 2023 00:17 UTC](https://treehouse.sofi.health/t/me-cfs-advice-website-links-experiences/9457/2 "2023-07-10T00:17:30Z")

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Hi Zoe, I’ve had Fibro (and arthritis) for many years and therefore chronic pain especially during flare-ups, so i can sympathise.  
We are not alone in here. I have read that many pioneers suffer from Fibro and other conditions that make a carefree life difficult.

I hope that your doc can give you something to help. They often prescribe Amytriptyline which works for some. I have tried it twice but it makes me feel too groggy in the daytime, like walking through treacle!

I hope you feel better soon and can get some good sleep - that always helps to reduce pain and fatigue i think 🥰